Dr Mark Jayes
Dr Mark Jayes PhD, PGCLTHE, MSc, MMedSci, Dip Psych, BA (Hons)
Research Fellow in Communication Disability
My profile
Biography
Academic and professional qualifications
2020 PG Cert Learning and Teaching in Higher Education, Manchester Metropolitan University.
2017 PhD Mental Capacity Assessment (Health Services Research), University of Sheffield.
2011 MSc Clinical Research, University of Sheffield.
2003 MMedSci Clinical Communication Studies, University of Sheffield.
1999 Conversion Diploma in Psychology for Graduates, London Guildhall University.
1993 BA (Hons) French, University of Sheffield.
Languages
French (B2)
Italian (A2)
Expert reviewer
Peer reviewer for academic journals: Advances in Mental Health and Intellectual Disabilities, BMJ Open, Disability and Rehabilitation, Health Expectations, International Journal of Clinical Practice, International Journal of Language and Communication Disorders, International Journal of Mental Health, International Journal of Speech-Language Pathology, Journal of Medical Ethics, NIHR Evidence, Qualitative Health Research, Trials, SAGE Open Medical Case Reports.
Reviewer of abstracts submitted for presentation at European Congress of Speech and Language Therapy, UK Stroke Forum, RCSLT conferences.
Consultancy and advisory roles
National Clinical Advisor, RCSLT: Mental capacity assessment and supported decision-making (2016 - present).
Member, Trial Steering Group, NIHR-funded Interact trial (2023-2025).
Member, Advisory Committee, MRC-funded CONSULT adjunct study (2023-2024).
Member, Advisory Committee, Aphasia Access State of Aphasia Report (USA, 2023).
External Examiner, Postgraduate programmes, Department of Clinical Speech and Language Studies, Trinity College Dublin (2022 - present).
Freelance trainer in topics related to mental capacity assessment, informed consent and communication facilitation.
Practitioner roles
Committee Member, Greater Manchester Public and Community Involvement and Engagement Forum (2023 - present).
Committee Member, Greater Manchester Council for Allied Health Professions Research (2022 - present).
Communication Co-lead, British Society of Gerontology Special Interest Group for Care Home Research (2019 - present).
Treasurer, RCSLT North West Hub (2022 - present).
Committee Member, RCSLT Mental Capacity Clinical Excellence Network (2019 - present).Mentor, NIHR Early Career Researcher Development Pathway (2018 - present).
Clinical Academic Mentor, RCSLT (2018 - present).
National Clinical Advisor, RCSLT (2016 - present).
Member of Department of Health / Ministry of Justice National Mental Capacity Forum.
RCSLT Research Champion
Scientific Chair, European Congress of Speech and Language Therapy (2020-2022).
Royal College of Speech and Language Therapists (RCSLT) Delegate to ESLA (European Speech and Language Therapy Association, formerly known as CPLOL) (2016 - 2022).
Prizes and awards
2022 Royal College of Speech and Language Therapists Fellowship.
2021 Royal College of Speech and Language Therapists Giving Voice Award.
2019 Highly Commended, Images of Research Competition, Manchester Metropolitan University.
2017 Finalist, Medipex NHS Innovation Awards.
2015 UK Stroke Forum Patient, Carer and Public Involvement Award.
Expert reviewer for external funding bodies
Funding Panel member, HEE/NIHR Integrated Clinical Academic Programme North West Bridging Scheme.
Peer reviewer for Australian Stroke Foundation Early and Middle Career Researcher Seed Grant applications, Barts Charity Research Project Grant applications.
Visiting and honorary positions
Honorary Research Fellow, Northern Care Alliance NHS Foundation Trust.
Visiting Lecturer, Department of Speech and Language Sciences, Leeds Beckett University.
Editorial Board membership
Associate Editor, International Journal of Communication and Language Disorders.
Member of Scientific Board, Logopedia e Comunicazione journal.
Membership of professional associations
Member of Royal College of Speech and Language Therapists (RCSLT) (RC0018785)
Health and Care Professions Council registered (SL10471)
Member of international Collaboration of Aphasia Trialists network (2020 - present).
Member of UK MRC-NIHR Trials Management Research Partnership Trial Conduct subgroup (2021 - present).
Interests and expertise
I am interested in collaborating on projects, or supervising doctoral research, related to:
- acquired communication disability in adults;
- shared and supported decision-making, mental capacity assessment and informed consent, particularly for people with communication disability;
- lived experience of communication and swallowing disabilities;
- health services research;
- inclusive communication methods.
Mixed methods research.
Qualitative research.
Inclusive research methods, user-centred design and co-production approaches.
Impact
My research is esteemed and influential nationally and internationally within broad disciplines and is instrumental in increasing social participation for people with disabilities, which is recognised as a global challenge. My research outputs have had substantial impacts on international policy development and UK legal reform. For example, my research has been cited in best practice frameworks for the care of people with disabilities (Australian Government, 2024) and people living with dementia (Welsh Government, 2022), and in Belgian policy guidance (Belgian Healthcare Knowledge Centre, 2022). My invited expert testimony transformed the 2018 “Decision-making and mental capacity” NICE guideline. My professional body (RCSLT) cited my PhD research in submissions to parliament that informed bill reading and amendment stages in both houses for the Mental Capacity (Amendment) Bill (2018) and to the Department of Health and Social Care’s consultation on proposed changes to the Mental Capacity Act 2005 Code of Practice and implementation of the Liberty Protection Safeguards (2022). The RCSLT policy team stated that my research was instrumental in achieving the policy and legislative changes required to extend the role of Approved Mental Capacity Professional to speech and language therapists (SLTs), who will now bring their expertise in communication to safeguard the rights of people with communication disabilities and make legal processes related to deprivation of liberty more inclusive of this underserved group.
My research has translated to the field of practice in supported decision-making, mental capacity assessment and informed consent, through the publication of: book chapters in textbooks; actionable practice tools including the Mental Capacity Assessment Support Toolkit (MCAST) andthe Consent Support Tool, which can be used by researchers to ensure the informed consent process is more accessible to, and inclusive of, participants with communication needs; the design and delivery of impactful specialist training commissioned by NHS trusts; and the creation of innovative education content for the university, Community Care Inform Adults, and NIHR Clinical Trials Toolkit website.
Projects
2023- 2024 “Supporting People with Aphasia to make DEcisions (SPADE): The Speech and Language Therapist / Pathologist’s Role in Supported Decision-Making for People with Aphasia: an International Survey” (PI; collaboration with Dr Anna Volkmer, University College London; Winsy Wing-Sze Wong, Hong Kong Polytechnic University; Alexandra Stipinovich, University of Pretoria; Elyse Shumway, Aphasia Institute, University of Toronto; Annette Rotherham, Te Whatu Ora, New Zealand; Ekaterini Prokopiou, Kartherina Therapy Centre, Cyprus; Analisa Marie Pais, University of Essex; Maria Assunção Matos, University of Aveiro, Portugal; Elissa Larkin, Shirley Ryan AbilityLab, Chicago, USA; Anthony Pak-Hin Kong, University of Hong Kong; Nomiki Karpathiou, Athens Alzheimer’s Association, Greece; Jytte Kjærgaard Isaksen, University of Southern Denmark; Virginia Brinkley, Norfolk and Norwich University Hospitals NHS Foundation Trust, UK. Unfunded.
2023-2024 International Research Collaboration Fund, Manchester Metropolitan University: “Building a supported decision-making framework for people with aphasia: international collaboration to develop a programme of research” (PI). £5567.
2023-2025 Health Education England (HEE)/NIHR Pre-doctoral Clinical Academic Fellowship (Primary Academic Supervisor for Helen Robinson. £70,852.
2023-2024 Health Education England (HEE)/NIHR Pre-doctoral Clinical Academic Fellowship (Primary Academic Supervisor for Catherine Martin). £73,996.
2022-2024 NIHR Research for Patient Benefit Award NIHR203173: “VAlidation of the Mcast CommunicAtion Screening Tool (VAMCAST): improving patient access to communication support during mental capacity assessments” (CI; collaboration with Dr Rebecca Palmer, University of Sheffield, Dr Nele Demeyere, University of Oxford, Dr Paula Beech, Northern Care Alliance NHS Foundation Trust, Mr Calvin Heal, University of Manchester and Ms Gill Pearl, Speakeasy). £157,540.
2022 Manchester Metropolitan University Research Excellence Funding: “Finalising the design of the Mental Capacity Assessment Support Toolkit (MCAST) communication resources” (PI; collaboration with Prof Janice Murray and Ms Jennifer Roche, Manchester Metropolitan University). £3780.
2021-2022 HEE/NIHR ICA Pre-doctoral Clinical Academic Fellowship NIHR301177 (Co-supervisor for Sophie Borrett with Dr Suzanne Beeke and Dr Anna Volkmer, UCL). £23,758.
2019-2022 Manchester Metropolitan University Global Challenges Research Funding: “Investigating the management of dysphagia in rural South African communities” (Collaboration with Prof Julie Marshall, Manchester Metropolitan University, and Dr Mershen Pillay, University of KwaZulu-Natal, South Africa). £10,810.
2019-2022 Manchester Metropolitan University / Nuffield Health Partnership education project: “Video learning resources to improve how staff work with people with communication disabilities (PI). £8800.
2018-2019 Manchester Institute for Collaborative Research on Ageing (MICRA) Seedcorn Award: “Feasibility of using an adapted version of the Mental Capacity Assessment Support Toolkit (MCAST) in care home settings” (PI; collaboration with Dr Laura Brown, University of Manchester). £6000.
Teaching
Undergraduate courses
I have designed and deliver teaching and research project supervision on the “Clinical Education 3” and “Investigating Human Development and Behaviour 3” units (level 6, BSc Speech and Language Therapy); “Professional Competence”, “Research Methods and Dissertation” units (level 7, MSc Speech and Language Therapy).
Postgraduate teaching
I have designed and deliver teaching and research project supervision on the “Professional Competence” and “Research Methods and Dissertation” units (level 7, MSc Speech and Language Therapy).
Postgraduate Supervision
I am currently supervising one doctoral student:
Helen Paterson: “Augmentative and Alternative Communication (AAC) training from the patient and the carer’s perspective”.
I have supervised one doctoral student to successful completion:
Helen Barrett: “Access to early childhood development and inclusive education services for refugee-children with communication disability in Rwanda”.
I am supervising two NIHR Pre-doctoral Research Fellows: Catherine Martin and Helen Robinson.
Courses
Supervision
I am currently supervising one doctoral student:
Helen Paterson: “Augmentative and Alternative Communication (AAC) training from the patient and the carer’s perspective”.
I have supervised one doctoral student to successful completion:
Helen Barrett: “Access to early childhood development and inclusive education services for refugee-children with communication disability in Rwanda”.
I am supervising two NIHR Pre-doctoral Research Fellows: Catherine Martin and Helen Robinson.
Research outputs
I have published peer-reviewed journal articles in international journals in the fields of: language and linguistics; public health; social sciences; social work; sociology and political science; speech and hearing; rehabilitation.
I have published book chapters in edited textbooks for allied health practitioners and a book (The Consent Support Tool, J & R Press).
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Books (authored/edited/special issues)
Jayes, M., Palmer, R. (2020) The Consent Support Tool. J & R Press.
Jayes, M., Palmer, R. (2016) The Consent Support Tool. Napier Hill Press.
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Chapters in books
Jayes, M. (2022) 'Assessing mental capacity for people with aphasia..' APHASIA IN CLINICAL PRACTICE.. J & R Press,
Jayes, M. (2018) 'Supporting multidisciplinary colleagues to develop and use accessible written information materials during capacity assessments..' Speech and Language Therapists and Mental Capacity. J&R Press,
Jayes, M. (2016) 'Assessing mental capacity as a Speech and Language Therapist: guidance and resources to improve practice..' Dealing with Capacity and Other Legal Issues with Adults with Acquired Neurological Conditions: A Resource for SLTs.. J&R Press,
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Journal articles
Rietdijk, R., Brunner, M., Conroy, P., Jayes, M., Togher, L. (2024) 'It's a changing landscape: Complexity and innovation in cognitive‐communication rehabilitation for people with acquired brain injury (ABI).' International Journal of Language and Communication Disorders,
Jayes, M., Madima, V., Marshall, J., Pillay, M. (2024) 'Dysphagia management in community/home settings: a scoping review investigating practices in Africa.' International Journal of Speech-Language Pathology,
Benn, Y., Jayes, M., Casassus, M., Williams, M., Jenkinson, C., McGowan, E., Conroy, P. (2023) 'A qualitative study into the experience of living with acalculia after stroke and other forms of acquired brain injury.' Neuropsychological Rehabilitation, 33(9) pp. 1512-1536.
Hinckley, J., Jayes, M. (2023) 'Person-centered care for people with aphasia: tools for shared decision-making.' Frontiers in Rehabilitation Sciences, 4pp. 1236534-1236534.
Russell, A., Shepherd, V., Woolfall, K., Young, B., Gillies, K., Volkmer, A., Jayes, M., Huxtable, R., Perkins, A., Noor, N., Nickolls, B., Wade, J. (2023) 'Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action.' Trials, 24
Jayes, M., Borrett, S., Bose, A. (2021) 'Mental capacity legislation and communication disability: a cross-sectional survey exploring the impact of the COVID-19 pandemic on provision of specialist decision-making support by UK SLTs.' International Journal of Language and Communication Disorders, 57(1) pp. 172-181.
Jayes, M., Austin, L., Brown, L.J.E. (2021) 'Supported decision‐making and mental capacity assessment in care homes: a qualitative study.' Health and Social Care in the Community, 30(4) pp. e1061-e1069.
Jayes, M., Moulam, L., Meredith, S., Whittle, H., Lynch, Y., Goldbart, J., Judge, S., Webb, E., Meads, D., Hemsley, B., Murray, J. (2021) 'Making public involvement in research more inclusive of people with complex speech and motor disorders: the I-ASC project.' Qualitative Health Research, 31(7) pp. 1260-1274.
Jayes, M., Palmer, R., Enderby, P. (2021) 'Giving voice to people with communication disabilities during mental capacity assessments.' International Journal of Language and Communication Disorders, 56(1) pp. 90-101.
Murray, J., Lynch, Y., Goldbart, J., Moulam, L., Judge, S., Webb, E., Jayes, M., Meredith, S., Whittle, H., Randall, N., Meads, D., Hess, S. (2020) 'The decision-making process in recommending electronic communication aids for children and young people who are non-speaking: the I-ASC mixed-methods study.' Health Services and Delivery Research, 8(45) pp. 1-158.
Jayes, M., Palmer, R., Enderby, P. (2020) 'Evaluation of the MCAST, a multidisciplinary toolkit to improve mental capacity assessment.' Disability and Rehabilitation, 44(2) pp. 323-330.
Jayes, M., Palmer, R., Enderby, P., Sutton, A. (2019) 'How do health and social care professionals in England and Wales assess mental capacity? A literature review.' Disability and Rehabilitation, 42(19) pp. 2797-2808.
Jayes, M. (2019) 'Improving Practice in Supported Decision-Making and Mental Capacity Assessment.' Logopedia e Comunicazione, 15(1) pp. 27-39.
Jayes, M., Palmer, R., Enderby, P. (2017) 'An exploration of mental capacity assessment within acute hospital and intermediate care settings in England: a focus group study.' Disability and Rehabilitation, 39(21) pp. 2148-2157.
Jayes, M.J., Palmer, R.L. (2014) 'Stroke Research Staff's Experiences of Seeking Consent from People with Communication Difficulties: Results of a National Online Survey.' Topics in Stroke Rehabilitation, 21(5) pp. 443-451.
Jayes, M., Palmer, R. (2014) 'Initial evaluation of the Consent Support Tool: A structured procedure to facilitate the inclusion and engagement of people with aphasia in the informed consent process.' International Journal of Speech-Language Pathology, 16(2) pp. 159-168.
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Conference papers
Hinckley, J., Jayes, M. (2023) 'Clinical tools to enable shared decision-making: putting people with aphasia at the center of care..' In American Speech-Language-Hearing Association (ASHA) Convention. Boston, MA, USA, 16/11/2023 - 18/11/2023.
Jayes, M. (2023) 'Co-produced e-learning for health and social care professionals: communication disability and supported decision-making.' In American Speech-Language-Hearing Association (ASHA) Convention. Boston, MA, USA, 16/11/2023 - 18/11/2023.
Jayes, M., Beech, P., Demeyere, N., Heal, C., Palmer, R., Pearl, G. (2023) 'Improving access to communication support during mental capacity assessments: the VAMCAST study..' In British Aphasiology Society International Conference. London, 13/9/2023 - 15/12/2023.
Paterson, H., Jayes, M., Lancaster, J., Murray, J. (2023) 'AAC users and nursing staff’s thoughts and perceptions of current AAC training with content considerations for future training interventions.' 37. 11/9/2022 - 13/9/2022. Communication Matters / ISAAC UK, pp. 21-25.
Jayes, M. (2023) 'Supporting People with Aphasia to Make Decisions.' In Aphasia Access Leadership Summit. Raleigh, NC, USA, 23/3/2023 - 25/3/2023.
Benn, Y., Jayes, M., Casassus, M., Williams, M., Jenkinson, C., McGowan, E., Conroy, P. (2022) 'Living with acalculia after stroke or acquired brain injury: patient experience and the lack of clinical care for the condition.' In American Congress of Rehabilitative Medicine Annual Conference. Chicago, Il, USA, 6/11/2022 - 11/11/2022.
Wade, J., Russell, A., Shepherd, V., Young, B., Woolfall, K., Volkmer, A., Perkins, A., Jayes, M., Ives, J., Huxtable, R., Birchley, G., Gillies, K. (2022) ''A whole greater than the sum of its parts’: synergies and outputs of a trials’ conduct working group focused on Complex and Alternate Consent pathways..' In International Clinical Trials Methodology Conference. Harrogate, UK., 3/10/2022 - 6/10/2022.
Jayes, M. (2022) 'The Speech and Language Therapist’s Role in Supporting People with Communication Disabilities to Make Decisions.' In 8th Congress of Baltic States Speech and Language Therapists. Online, 12/5/2022 - 13/5/2022.
Benn, Y., Jayes, M., Conroy, P., Cassius, M., Williams, M., Jenkinson, C. (2021) 'A qualitative exploration of the lived experience of, and quality of professional support for, number processing deficits after brain injury or stroke.' 5/10/2021 - 7/10/2021. Royal College of Speech and Language Therapists,
Jayes, M., Borrett, S., Bose, A. (2021) 'Impact of the COVID-19 pandemic on provision of specialist decision-making support by UK SLTs: a survey study..' In Royal College of Speech and Language Therapists. Online, 5/10/2021 - 7/10/2021.
Benn, Y., Jayes, M., Conroy, P., Cassius, M., Williams, M., Jenkinson, C. (2020) '"I feel dumb, embarrassed, and frustrated”: A qualitative exploration of the lived experience of acalculia..' In 15th UK Stroke Forum. Online, 7/12/2020 - 9/12/2020.
Jayes, M., Austin, L., Brown, L.J.E. (2020) 'Mental capacity assessment in care homes: could the MCAST facilitate practice?.' In Health Services Research UK. Online, 1/7/2020 - 3/7/2020.
Jayes, M., Moulam, L., Meredith, S., Lynch, Y., Whittle, H., Randall, N., Judge, S., Goldbart, J., Murray, J. (2019) 'The rhetoric and reality of co-producing research with those who use AAC.' In Royal College of Speech and Language Therapists. Nottingham, 25/9/2019 - 26/9/2019.
Jayes, M., Austin, L., Brown, L.J.E. (2019) 'Supported decision-making and mental capacity assessment in care homes: could the Mental Capacity Assessment Support Toolkit (MCAST) facilitate practice?.' In Royal College of Speech and Language Therapists. Nottingham, 25/9/2019 - 26/9/2019.
Jayes, M., Austin, L., Brown, L.J.E. (2019) 'Adapting the Mental Capacity Assessment Support Toolkit (MCAST) for use in care home settings.' In British Society of Gerontology Conference, Liverpool, 11.07.19. Liverpool, 10/7/2019 - 12/7/2019.
Jayes, M. (2018) 'Ethical reasoning in Speech and Language Therapy.' In FLI XII Congresso (Federation of Italian Speech and Language Therapists National Congress). Palermo, Italy, 4/10/2018 - 6/10/2018.
Jayes, M., Palmer, R., Enderby, P. (2018) 'Promoting the needs of patients with communication disorders during mental capacity assessments.' In CPLOL European Congress of Speech and Language Therapy. Cascais, Portugal, 10/5/2018 - 12/5/2018.
Jayes, M., Palmer, R., Enderby, P. (2017) 'Feasibility of using the Mental Capacity Assessment Support Toolkit (MCAST) in clinical practice..' In Royal College of Speech and Language Therapists. Glasgow, 27/9/2017 - 28/9/2017.
Jayes, M., Palmer, R., Enderby, P. (2017) 'Development and feasibility of the Mental Capacity Assessment Support Toolkit (MCAST)..' In UNESCO World Conference on Bioethics, Medical ethics and Health Law.. Limassol, Cyprus, 21/3/2017 - 23/3/2017.
Jayes, M.J., Palmer, R., Enderby, P. (2015) 'Development of a mental capacity assessment support tool: A user-centred design process.' In UK Stroke Forum. 10. SAGE Publications, pp. 65-65.
Jayes, M.J., Palmer, R.L. (2013) 'Taking consent from people with communication difficulties post-stroke: results of a national online survey.' 8. WILEY-BLACKWELL, pp. 30-30.
Jayes, M.J., Palmer, R.L. (2012) 'Initial evaluation of a procedure to obtain informed consent from people with communication difficulties.' 7. WILEY-BLACKWELL, pp. 38-38.
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Posters
Jayes, M., Palmer, R., Enderby, P. (2017) 'Development and feasibility testing of the Mental Capacity Assessment Support Toolkit (MCAST).' [Poster] In UK Dementia Congress. Date viewed 8/11/2017.